Sunday, September 28, 2008

It's Been 2 Months!

Lilymei getting her first good look at her parents.  She really looks unsure doesn't she?

Two months later...Lilymei gives lots of smiles, kisses, and love!

Lilymei has a new hobby, "playing" the Wii.

Lily loves to watch the boys play video games and now she feels like she is participating too!

The past 2 months have been a whirlwind.  It seems like Lily has been with us forever; we can't remember what we did without her!  She brings so much laughter and joy to our home. Lilymei is showing her personality more and more every day.  She has been very vocal and LOUD the past couple of days. Lily can say a few more words:
  • thank you
  • I love you
  • up
  • uh-oh
  • "woof"
  • peek-a-boo
  • baby
  • bye-bye
  • Drew
Lilymei can hold up one finger when we ask how old she is.  She also puts her hands above her head when we ask how big she is.  Lily tries to dress herself and she climbs up on her toddler bed when we ask her to so we can change her diaper.  She has walked up and down the hallway with her walker toy several times this past week and she has stood alone, unassisted, for a few seconds before plopping down on the floor.  

It looks like we will be leaving for Hawaii on October 8th (Guam time), arriving October 7th (Hawaii time).  On the 8th, Lilymei has her health and physical exam.  Her MRI is set for the next day, October 9th.  We will be meeting with the neurologist on October 14th.  It looks like Scott will be flying with me and Lilymei.  The boys will be staying on Guam with family friends. They have so much going on with their daily routines that they decided to pass on this trip.  I know...who can resist going to Hawaii??? 

Sunday, September 21, 2008

We have an appointment!

Scott just received word that Lilymei is scheduled for her MRI on October 9th. Lilymei and I will be leaving for Hawaii tentatively October 5th or 6th. Scott and the boys are hoping to catch a hop (military flight) and meet up with us in Oahu. It looks like we won't have our meeting with the neurologist until the 14th. We will have a long weekend just waiting to hear the results. I personally don't have a problem celebrating our 16th wedding anniversary in Hawaii but I wish we were going to be there just for fun. We were anxious when Lilymei had her CT scan under sedation but now I will most likely being flying by myself (those of you who know me, know I don't like to fly anyway, let alone be responsible for a baby on a plane!) and praying that Scott is there to meet me and can help me get Lilymei settled when we arrive. I don't know yet what kind of tests prior to the MRI to expect or what other doctor appointments have been made for us. We should hear more this week and we will keep you posted.

Here are a few new pictures....


Spaghetti is so yummy!

I love my Drew!


I love my Nate too!

Tuesday, September 16, 2008

Patient Drew, Lilymei's Well-check, Boy Scout Nate

Drew had surgery yesterday. It was a planned, corrective out-patient procedure. Everything went very well and he has been home 24 hours now. He will have a 2-4 week recovery period, which he is not too excited about. Until he is completely healed he will not be able to swim in the pool or the ocean. What's a kid to do if he lives on a tropical island? So much for participating in the first swim meet of the season this weekend! Lilymei has been graciously giving lots of kisses to Drew to help him feel better. Nate has even stepped up to allow Drew to "hold" the tv remote for a month (that means a lot!) and he has volunteered to take over Drew's diaper duty (taking the stinky diapers out to the trash when called for) for the month. Once Drew is feeling up to it we will get back to his home school work~ 4th grade!

Lilymei went to her monthly well-check appointment today. She didn't grow in length since last month but she did gain a little over 2.5 pounds. Yeah! Her head circumference didn't change but her soft spot hasn't closed anymore either. The doctor was very pleased with all the skills she has accomplished since last month. Lilymei has tooth number 17 coming in. I knew something was up with all the drooling the past couple of weeks. This afternoon the physical therapist, Lenny, from EDIS came out and did her assessment. We are hoping by next week we can have a plan of action presented and can finally get started on therapy. On a positive note, it was determined that Lilymei has only a slight developmental delay and she should be able to catch up with no problem. We are still awaiting news as to when Lilymei's MRI is scheduled for. We were told we should be traveling no later than Oct 2nd!

As for Nate, he is going strong, mentally and physically. He has started 7th grade this year in our home school. We have purchased some new and exciting curriculums and we are anxious to get started on them. Last night Nate had his Boy Scout Board of Review and he successfully achieved the rank of Second Class. Good job Nate!!! Nate is swimming again on the Andersen Marlins swim team (as is Drew) and will be participating in swim meets beginning this weekend. He is also keeping up with his piano playing with weekly lessons with Mr. Dale. Nate and Drew have been doing a lot more duets, with Drew on guitar. Since Lilymei loves music so much we are wondering what instrument she will be playing soon.

Monday, September 8, 2008

Look at what Lilymei can do & Back to School for the Boys

Random photos...

Drew and Lilymei playing in the bedroom.

Drew and Lilymei at the base pool.

Lilymei and Nate, happy in the morning.

Lilymei has just blossomed in the last week. She is very comfortable with us and her surroundings. She is into everything! She's had so many "firsts" my calendar is full just trying to document them all. Some of her new "skills" from the past week include:


  • blowing kisses (hand up to the mouth, not yet "throwing" them)

  • turning off the light switches

  • puckers and gives kisses when we ask

  • feeding herself using a spoon or fork

  • drinking from a cup (without a lid!)

  • "real" crawling~ not just combat crawling

  • took 3 steps with her walker toy

  • puts her mouth in the pool and blows bubbles

  • stands up in her crib

  • makes "shh" sound with her finger to her lips

  • gives high-five

  • can use sign language for "more"

  • can say "Mama", "Dada", "bubbles", and "Lily" AND

  • climbs onto the couch.



"Look at what my brothers did to me! I'm propped up on the couch with 2 bean bags chairs, and lots of pillows and blankets!"

"Don't tickle me anymore! I can't breathe I'm laughing so hard!"

"Ok, this is crazy! I'm having so much fun!"

The boys and I started our home school year last Tuesday. So far, so good. Lilymei is getting herself all over the living room and dining room trying to see what the boys are doing. Even though they are getting work done they still want to stop what they are doing and play with Lilymei. Who can blame them? I know I'm not getting alot of my "chores" done either until she is asleep. She's just too much fun. She brings lots and lots of laughter to our home.

Medical note: We are waiting for Lilymei's MRI appt to be scheduled. We should be in Hawaii within the month. The CT scan results are just what we heard initially, definite hydrocephalus and chronic subdural bleeding. We are hoping the MRI will tell us definitively what we will need to do next for her care and well-being. Please keep her in your prayers.

Lilymei joined our family...

Lilymei was born...

Drew is...

Nate is...

Jean and Scott have been married....