Showing posts with label hydrocephalus. Show all posts
Showing posts with label hydrocephalus. Show all posts

Wednesday, August 20, 2008

Updates!

Ready for church!

Cheese quesadillas at Margarita's are GREAT!  I love them.  I ate the whole thing!

Lilymei had her CT scan on Monday.  She did very well and tolerated the sedation with few side effects.  We have received preliminary results but we are awaiting the final analysis from a pediatric neural radiologist?? (something like that).  Right now what we do know is that Lilymei definitely has hydrocephalus and that she is still suffering from subdural bleeding.   Once we get the complete results we can get the MRI scheduled.  For that, we will have to fly 7 hours to Hawaii and visit Tripler Army Medical Center.  

Lilymei also had x-rays taken of her hips since she is very unsteady on her feet and not walking yet.  It looks like her hips are fine and we will need to continue to work with her on strengthening those legs muscles.  We are in the process of getting Early Intervention to come out and access her situation.  I'm sure she will be having therapy sessions beginning soon.  We will continue to post updates when we find out more details.

I can't get the video I wanted to load on the site tonight so I will leave you with a photo of our sweetie pie sleeping.....

Lilymei joined our family...

Lilymei was born...

Drew is...

Nate is...

Jean and Scott have been married....