Friday, October 17, 2008

MRI Results

We made it home safely from Hawaii last night. We were all so glad to be in our own beds. Lily did wake up at 3:30am, 5:30am, and then was up for good by 7:15am. That's ok. Scott was already up getting ready for work, and I couldn't sleep anymore myself.

We did meet with the neurologist on Tuesday to discuss the results of the MRI. We have GREAT news! Lily does not have hydrocephalus! She does have ventriculomegaly (enlarged ventricles) but she is not having any problems with increased pressure in her head. Lily's body is taking care of any excess cerebral spinal fluid that is roaming around inside her skull on its own. The neurologist also talked about her subdural bleeds. Neither one is currently bleeding. The doctor does not expect her to have any problems with them. He did stress that she could have more bleeds if she falls and hits her head since the blood vessels are stretched between her brain and the skull. Overall though, she is very healthy. She is making tremendous strides in catching up in all areas of her development. We do not have to do ANYTHING medically for her. God is good! The neurologist suggested that she continue to be monitored by her pediatrician more often than the yearly well-baby visits and we will continue with her weekly physical therapy sessions to get her walking as soon as possible. We thought we might have to go back to Hawaii in 6 months for another MRI or even move back stateside for more medical care but the doctor said no. We are free to roam around the world as much as we would like. (I know all of our family in Ohio is not happy to hear that part.) We are just so thankful that all is well with everyone in the family. Thank you for all your prayers!

Last, but not least, we would like to thank Letty and Marlon for taking care of the boys for us while we were off island. We felt so much better knowing everything was ok with the boys so we could concentrate on Lily and Scott. Many thank-you's Letty and Marlon!!

17 comments:

Valorie Leonard said...

Yeah! So glad to hear that Lily is doing great and you are free to roam the world!

webwahm said...

Hi - I'm part of a forum for Ventriculomegaly and wondered if you would think about visiting - there is so little information for us, especially 'post-birth' regarding outcomes, and there are a lot of very worried mums on that forum not knowing what to do, what is going to happen or what to expect.

The more people we can get sharing their experiences, the more we can help support VM mums out there.

http://www.i-am-pregnant.com/encyclopedia/Pregnancy/Ventriculomegaly

Thanks for your time :-)
Adele (Zacs-Mum on VM forum)

Melinda said...

We're so happy for Lily Mei and all of you. What a blessing! Melinda

Mom 2 Four said...

YEAH!!! We are so happy for you and your family. Christe

William said...

HURRAY! Just as you always knew, she is PERFECT! This is great news and we are so happy to hear that everything is well and that your trip was such a success. Sounds like you have some GREAT friends too.

Bailey said...
This comment has been removed by the author.
Stacey said...

I'm so happy to hear that Lily is doing so well and that you are free to continue to live in paradise!

Susan said...

Yeah!!! I'm so glad to hear this wonderful news! Now, you can move on with life!

Love you all! Susan

Jeff said...

Wonderful news!

Chad and Kristy said...

What wonderful news!! God is so good!!!!

Love,
The Gray's

The Princess's Mommy said...

Praise the Lord!!! I am so happy for you and I know you are so relieved!!

Love you,
Monica

Anonymous said...

That's the great news we have been waiting for! Love you all, Kim

Patti said...

That is great news!! I have been thinking about you guys and hoping everything would turn out well.

Patti said...

Great news!! Now you can breath a little easier...

Please give Lily Mei a big hug from all of us!

Heather said...

Hurray, great news!
So glad you stopped by, I'd lost your blog when my blog list disappeared, and now I can follow along again.
Heather BT

Jennifer said...

Thank you for leaving a comment on our blog. It looks like your family is being stretched in more ways than one recently. May you be blessed on your journey!

Sarah said...

Great news Lily does not have hydro! What fantastic news!

Love Sarah & Violet
(from Violet's journey)

P.S Lily is just divine!

Lilymei joined our family...

Lilymei was born...

Drew is...

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Jean and Scott have been married....